10 years ago, MRI pictures outed my MS

A decade later, I reflect on my preliminary diagnosis of multiple sclerosis

“Hope is a reconnaissance unit always scouting new ways in.”

–Tamara Kaye Sellman, “The Words But For The Words,”
Intention Tremor: A Hybrid Collection (MoonPath Press: January 2021)

The quote succinctly captures who I am and where my head is at these days. But it wasn’t always this way.

It will take more than an infographic to document what it means to look back on the decade that followed my MS diagnosis–the goods, the bads, the uglies–but here some highlights:


The publication of my first book, INTENTION TREMOR: A Hybrid Collection in January 2021 and spent the next eight months promoting it through my digital tour (because no bookstores were open live or offering readings)

Small pictures, top row

Left: Reinvention of my writing life includes an overhaul of my website and new novel-length fiction pursuits that include characters with multiple sclerosis (Eminent Domain, The Flare)

Center: A decade of MRIs and, so far, NNDA (no new disease activity)

Right: Surviving COVID-19 after avoiding it for 3 years, thanks to paxlovid and molnupiravir… and now that I have your attention, please get vaccinated and wear a mask, THE PANDEMIC IS NOT OVER YET and my MS and chronic peers still need your vigilance so they can enjoy getting back to normal. It will take all of us… 

Small pictures, center row

Left: Columnist for BioNews Services, MS in Moderation

Center: Sometimes the work of living with chronic illness is an uphill battle. Check these out to learn more:

Right: Columnist for Health Union, MultipleSclerosis.net

Small pictures, bottom row

Left: Fatigue remains my worst symptom, though I still experience aphasia, muscle spasticity (especially “the hug“), and sensory overload

100% of my proceeds from INTENTION TREMOR still benefit the Accelerated Cure Project, and I’m part of their research study looking at people with MS during the pandemic

Six years of Tecfidera ended with a “medication vacation” in 2019 that I never returned to because of the pandemic

To all my chronic peers who have the audacity
to rise every day to live their best lives:
this world doesn’t deserve your
infinite light, enduring humor, and rooted strength.

Not pictured but not forgotten:

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